With ‘Expertise mapped’ we visualise the organisation of care for rare diseases from the patients’ perspective. It generates an overview of where expertise for rare diseases can be found, how centres of expertise are organised and what the perceptions, needs and wishes of patients with rare diseases are.

Knowledge maps visualise the organisation of care and the experiences of patients with healthcare. The knowledge map is divided in two sections: the experiences of patients and the organisation of care.

Expertise for rare diseases mapped
Abstract - Orphanet Journal of Rare Diseases 2016 11(Suppl 1):143